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Early this week, Bryce was doing great on the CPAP with a low rate, so yesterday they turned the rate to 0. He did okay with the new settings, but had a bad spell this morning, so they decided to turn the rate back on, which basically means he isn't quite ready for the nasal cannula. Unfortunately, Bryce is not a big fan of having two hard plastic CPAP prongs shoved up his nose, so he squirms around a lot, which is causing his poor little nose to get inflamed. Over time, too much chafing can cause serious injury, so they'll be forced to switch him to either the nasal cannula (which he isn't ready for) or back to the mechanical ventilator (which damages his lungs) if he doesn't calm down.
The good news is that whenever Christie or I stand at his bedside and gently cradle him with both hands, he stops squirming and his vital signs improve. So, it seems that he's fine with the CPAP, as long as either Mommy or Daddy is holding him. Practical concerns such as eating and sleeping aside, I doubt I need to explain why the ideal solution of "one parent at Bryce's side all day and night" is difficult to implement when you have careers and a toddler clamoring for your attention. Nevertheless, I gladly spent seven hours with Bryce today, and Christie and I are busy devising plans for Thursday and Friday which maximize parental bedside time. Meanwhile, we're hoping that he'll grow out of this stage shortly.
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And so ends another day in the life of a preemie parent! Hopefully, better (or at least more relaxed) days are ahead. :) Our sincerest thanks to everyone who has supported us through the trials of the past few weeks, whether directly or indirectly -- Christie and I were touched by your cards, gifts and generous donations to the March of Dimes. We'd especially like to thank our babysitting squad and the angel that left the 'My Little Pony' at Chloe's graveside; it made our day. Print this post
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